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pheochromocytomai had a pheo removed from my r.adrenal 5 yrs.ago this nov. it has now came back & spread to my liver, boned, ribs, skull. if anyone has pheo. i would like to hear from them. as of now my dr. is doing nothing. he says it would all be experimental. im not sure what to do....Read the full article
Re: pheochromocytomaMitotane may offer some benefit, you should discus it with your Doctor. Good luck I wish you well.
Hello Velma...Hello Velma,
You have a pheochromocytoma that split to different organs. Since your doctor is not giving you any medication, I would suggest that you ask him to prescribe you Mitotane, as UroDoctor told you. I have a pheochromocytoma in my left adrenal. It will be removed sometime in January 2008. I still not know if there is mestastasis. But a CT Scan shows some vertebras "suggestive of mestastasis", and probably I will have a vertebras biopsy done, not sure yet. I don't know what I'm expecting. I wish you all the best 1 And, I would like you to let me know how you are doing. Dianita Montreal, Canada
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