Interstitial Cystitis

[livingwith]

I was diagnosed wtih intersitial cystitis when I was about 17, right after my son was born. I am now 36 y.o. I have had extreme, though less bouts of pain and each time all urinalysis show lack of infection, though blood in urine occurs occasionally.
When I has cystoscopy done (where they look into bladder with scope the doc said my bladder had extensive ulcers and I was in excrutiating pain when they filled my bladder with some saline fluid. They tried me on some experimental drugs that did no...Read the full article

[doggie]

You did not mention whether you had been on the diet recommended for IC. I never eat or drink anything that is not allowed and I am on Elmiron (full dose), taking hepbrin instillations, and I use
Prelief (to neutralize acid in foods.) Doing this for 3 mos. After five years I am now without pain or frequency. You have to be strick with this. It is hard, but it is worth it. Good Luck.

[helpNeeded]

I thought I read that they can repair bladder ulcers through laser surgery. That should be something to consider -- get plenty of opinions first and interviews of those who've had it done!

Wishing you health and recovery soon...

[doggie]

My post of March 13,2008 stated that I have been free of pain and frequency for five years. I do not know how that got there but I have only been on medication for 4 months. I guess that was just an
error. I am getting very slowly better.