Interstitial Cystitis

[livingwith]

I was diagnosed with IC after a cystoscopy. Shortly after, I began tingling all over my body. I was also experiencing severe burning pain not only in my bladder, but my back. I have shortness of breath, also. Unfortunately I have been diagnosed with asma [asthma], sleep apnea, fibromyalgia, chronic fatique syndrome, gastritis and barret’s esophagus. I also have a small brain tumor on the left side of my brain. All these disorders have medical documentation. I also have depression (D...Read the full article

[courtneylovegrove]

hi i am 23 years old and feel like im going on 80. i have been to hundreds of doctors and have been like many messed around. all my tests came back negative. I feel too that this has effected my whole functioning as a human. one problem after another and no one can get to the root of the problem. I was reading up on candida and its amazing the likeness of my symptoms. Have you looked at it or tried treatment for it. please let me know as i too am so confused and lost and dont no were to turn.

[sadone]

I understand exactly how you feel.
I am a mother of three kids, with a dog and working full time in stressful management position.
In April I fell apart. I was diagnosed with IC after my cysto in July.
Since then my life has been deteriorating.
I am now on Elmiron, Vesicare, Wellbutrin for depression and sleeping pills.
I have had to get help from family members to help around the house, etc.
I am also getting UTI's which are being treated with antibiotics.

I keep having to justify my pain and discomfort to doctors, friends, co-workers and family.
I am so tired of people not understanding how it feels to be sore down there, have a swollen abdomen and being in pain all the time. People say things like "cheer up" it could have been cancer.

I used to be a high achiever, independent and people looked up to me as being a superwoman.
And now they don't even ask how I am because they know what the answer will be.
I am trying to keep my job for financial reasons and struggling in doing this. I am so stressed out because my job is stressful and co-workers want me to perform at the high level that I used to. This causes me to feel like a failure. I am going to ask for part time hours but who knows what they will do.
Sometimes I wish I could just stay home and be on a disability.
This disease is horrible. The chronic pain, change in physical appearance and feeling depressed and tired all the time is so difficult, not to mention the pee breaks.
Bye for now.
Sad One