Interstitial Cystitis

[livingwith]

Hello Everyone, I was wondering if anyone else is having problems with the pelvic pain from IC going into the hips and buttock area and then down to the legs. I have been dealing with IC for 5 years but since April, my Dr and I cant get me out of this flare up. We have tried IC Cocktails, Elavil, and Cystocopies. Nothing has helped, so now I have an appt with a urogynecologist. So hopefully he can help me!! But now this pain is all over my bottom half, and cant take it. So was just wondering if ...Read the full article

[asl]

I to have pain in my hips and buttocks my right leg will go completly numb starting at the top my my pelvic region. My physical therapist says its normal and goes with the disease. just gave me stretches. Example put both legs straight and bend one leg and put it on the other lift the straight leg up with the bent one on top of it. Seems to help me.

[glo65]

Your dealing with referred pain due to the IC and you would benefit by looking into trigger point therapy and learning to breathe and do relaxation exercises. I do both of these at home and I have decrease my symptoms by 70 %.

gloria p.

[LilMa]

I have had the same pain with my i.c. I have had it for ten years but the pain in my lower half did not get bad until recently. At first when the pain got bad in the lower half I went to the e.r. a couple times but they told me i would have to see a special dr- the problem- there is no doctor close to where we live that knows much about ic.and the doctors here won't give me pain meds to help with pain so bein a single mom on disability living with ic i just thank God everyday for the strenth to raise these kids and do the best I can.

[glo65]

Please visit IC Friends meeting place lot of great information that is absolutely free, no one selling you anything a positive community that cares and helps. Made some great friends there and have resolve most of my ic issues. pass the site along to others.

www.icfriends.ning.com

[LilMa]

Thank you for that information. I will do that.

[glo65]

Hi I would like to invite you to join IC Friends Meeting Place. www.icfriends.ning.com

It is a postive, upbeat site with lots of great information that is helpful.