[AChase]

Im a 21 year old female that for the past 2 1/2 years had undiagnosed abdominal pain. My doctors in the Air Force did not want to do anything for me. OB/GYN docs when I was 18 wanted me on Depo Lupron and my doc on base refused, and I didnt blame him for that. the doc that did my laparoscopy surgery in january 2006 and claimed I had endometriosis I found out AFTER the surgery her licence was being pulled. So I threw her DX out the window in my mind. I continued to see OB/GYN docs while in the miltiary for different opinions. Each watned me on Lupron when they were only going on a surgery report that the doc herself contradicted herself on and I myself refused after I did the research on it. So The military put me up for a medical review and released me on medical disability and reitred me at the age of 19. I was given less than 6 months by them to try and find an answer once i had arrived to my base.
I remained in GA and tried a different doc after I was released but I made the mistake of keeping the doc ON base. He told me he thought I was making it up and refused to treat me. In January 2007 I moved back to Missouri where my mom lives, I had to get to a place with new docs and new minds. I got back on my feet as far as a job and a home and then started again seein docs for my pain. I went to KU Med and saw the OB/GYN doc. He did another lap in January 2008 and said everything came back fine. Said nothing could have looked any better. So he referred me to a doc in Urology at KU Med. I met with him in March and he said he wanted to do the surgery and look for IC I agreed.
Today was that surgery. And after 2 1/2 years of being in pain and not being able to walk, run, stand for too long, ride a horse or anything that required me to be on my feet, I just didnt care if my DX was uncureable. But now that Ive been home from surgery for several hours and had time to think about it and continue to look up info on IC Im heart broken because I guess I was hoping for a DX of something that was uncureable and more more "common" for a lack of words and docs knew meds that have helped many other people instead of being unsure of the condition itself and how to at least "control" the pain.
I dont have any where else to really turn to for support, so Im grateful I found this forum and hope its not ugly and rude like Ive seen forums be. I know my boyfriend will try and support me the best he knows how, but at the same time, he is not medical savvy and so its hard trying to lean on him yet at the same time explaining what it is. I dont have a close relationship with my family at all. They were abusive and never really seemed to care what was going on in my life, so I am grateful for my boyfriend and his support and ability to pick up the pieces that my family failed to. And like I said I do hope to become grateful of this place too and finding some kind of support.
Thanks for listening to me =)