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Is there such a thing as a "Kidney Stone Specialist"?

Post a new topicby leanne215 on Mon Oct 27, 2008 12:13 pm

Help, I've had 2 kidney stones, 1 in each kidney for 2 years now. It has gotten worse and I ended up in the emergency room with horrible pain. My stones are both small 3/4mm, so the 2 docs I've seen don't want to do much but tell me to drink lots of water, and have given me flomax to help relieve the pressure from my bladder, which does help a lot. I had a cystoscopy and a utereoscopy, which resulted in pushing the 1 stone from my ureter back into the kidney. Now I'm back where I started and am having non-stop pain in my back, front under the ribs and also by my hip bone. Does anyone know of a kidney stone specialist in the NW Suburban Chicagoland area? It's a family--thing genetically as all my brothers, sisters and nieces have had issues--they all live out of state though.

Any advice or help would be much appreciated.
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Re: Is there such a thing as a "Kidney Stone Specialist"?

Post a new topicby haylee_beutler on Mon Oct 27, 2008 12:57 pm

Search for a large urology clinic. If you can find one with at least 3 or 4 urologist working there, usually one of them will specialize in kidney disease and stones. Some urologist specialize in some aspects of urology more than others. You should pass a stone that small with no problems and little pain. If you have quite a bit of pain, i would definately go back to a urologist considering it is probobly sometihng other than a kidney stone or you could have a kidney stone in your ureter again. Stones do get bigger so it may be a lot larger than it was last time you went in. There is a pretty large urology clinic in chicago. Here is their web address. Check it out! http://www.nmua.info/index.html Good Luck and i Hope this helps!!!
--Haylee--
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Re: Is there such a thing as a "Kidney Stone Specialist"?

Post a new topicby leanne215 on Mon Oct 27, 2008 1:49 pm

Thanks for the link. Unfortunately, I have had 2 CT scans in the past 3 weeks as well as the Cystoscopy and ureteroscopy. Everyone says that I should be able to pass stones that small; well, it's been 2 years of drinking gallons of water, etc. Jumping, you name it, I've done it. I'm a very small-framed women and I'm told my stones have many spurs. If my ureter is only 2-3 mm wide and the stones are 3-4 with spurs, it's obviously not working. Anyone else in the same shape I'm in here? I'm very athletic, work out regularly and consider myself to be a pretty health eater too. That's what frustrates me so much about this problem. Everyone tells me I should be able to pass them--I don't know what else to do at this point????

I'm going to try looking in the link you sent. Thanks, but they're not going anywhere easily.
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Re: Is there such a thing as a "Kidney Stone Specialist"?

Post a new topicby urbanj on Tue Oct 28, 2008 12:05 pm

I also live in this area. It looks like its Northwestern Medical Center downtown. I don't see any other cutting edge hospitals in our area. After two failed lithrotripsies my guy told me if I'm lucky I'll take them to the grave. That was two years ago and I'm not that old. The stones just grow and become more painful. I'm sorry to say that seeing the person who pushed yours from the ureter back into the kidney, instead of zapping it, is waisting your time and money. We need a more agressive approach.
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Re: Is there such a thing as a "Kidney Stone Specialist"?

Post a new topicby leanne215 on Tue Oct 28, 2008 1:55 pm

Thanks for the input. I'm going to a large, supposedly good group out of Lutheran General/St. Alexius. I just can't believe that we're expected to just live with this type of discomfort and pain. Unless they get large enough to cause blockage of some kind, the docs don't care if you're in pain--no medical issues that are "emergency" enough to deal with. Only extreme pain that for some reason they feel we shouldn't be having unless the stones are large. Pain is pain and none of us are looking to be in pain, so it's not in our heads! Seems like the 2 procedures you went thru didn't work either. Wish I knew what the answer was for me.
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Re: Is there such a thing as a "Kidney Stone Specialist"?

Post a new topicby raychokarakolov on Tue Oct 28, 2008 3:12 pm

Dear leanne215

You have to know that your ureters are not 2-3 mm in diameter - the height of a person does not influences proportionally on the dimensions of the internal organs - the nature takes in account the physical parameters of the urine /density, viscosity, surface tension/ and its capacity to flow freely inside these organs, therefore the dimensions of your ureters are normal and should be appx. as your urethra - 8-10 mm in diameter. The stones detected by the CT are usually larger if they are serrated /with spurs/ as spurs are not clearly detected - only the core of the stone gives a hard shadow after projecting the ultrasound rays. And very probably you have a stones with 3-4 mm core but the maximum dimension is 5-6mm and as ureters are not of round shape in the cross-section the stone block on the way to the bladder.
Very imortant is to eleminate the future risk of such blockage as you may get hydronephrosis - as I know the future problems begin with this fenomena. Doctors tries with simple methods to remove the stones - by natural flow of urine through the massive acceptance of liquids but this method do not give a positive result.
Please try once again with strawberry juice impact /2-4 liters per 12 hours/ and if there is no result consult the doctors for more radical intervention.

Regards

RK
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Re: Is there such a thing as a "Kidney Stone Specialist"?

Post a new topicby leanne215 on Tue Oct 28, 2008 3:55 pm

Thanks for such an informative response. I will try the strawberry juice impact. Someone told me to try 2 liters of coke in 2 hours and then asparagus pureed immediately after. I actually did it and it didn't do the trick--cleared my system though. I'll try the strawberry juice. At this point, I'd try just about anything.
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Re: Is there such a thing as a "Kidney Stone Specialist"?

Post a new topicby raychokarakolov on Wed Oct 29, 2008 5:19 pm

Dear leanne215

I will try to forward you the latinian name of the strawberry leaves which helped me some times but I will do it after some hours. I hope you will find the same product in your shop.

Regards

RK
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Re: Is there such a thing as a "Kidney Stone Specialist"?

Post a new topicby leanne215 on Thu Oct 30, 2008 8:58 am

Please let me know about the strawberry juice or leaves. I'm not sure where to get it.
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Re: Is there such a thing as a "Kidney Stone Specialist"?

Post a new topicby raychokarakolov on Thu Oct 30, 2008 2:24 pm

Dear Leanne215

The latin name of the herbs in question is "Folia Arctostaphylos uva-ursi" and it it is spread throughout the commercial network. These leaves should be boiled during a time prescribed in the inserted manual and the liquid with dissolved substances from this leaves should be accepted in 20 C temperature - it facilitate the stretching of the urine ways, desinfects this ways, releaves a pain and dissolves stones - it helps but not in all cases. Should be tried.
Please check whether you used the same juice.

Regards

RK
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