Pediatric Urology

[Zachsdad]

My 4 year old son was diagnosed with dysfunctional elemination syndrome last year. He currently takes laxitives every day and has a Cathed 4 times a day. We live in Louisville, Ky and have had him all over. Recently we went throught the bowl management program at Cincinatti childrens hospital and they are the ones who put him on his current program. He's been tested for everything from tethered cord to Doctors telling us that he's just stuborn. Originally they told us that his impacted colon was putting pressure on his bladder and he wouldn't pee for days and we'd have to take him to the doctor or ER to be cathed or have an enima. We were originally also told that over time his bladder that was "streched" do to him not peeing would eventually shrink back to somewhat normal size. Thus the reason we do the caths to keep his bladder empty. Recently we were told that this was likely a lifetime problem and that he would probably have to undergo these treatments forever. Just wondering if anyone else had gone through anything similar and it anyone was showing signs of improvement. Imagine our heartbreak when we learned that dispite our efforts he might not get any better.