[stan2e]

I am looking for a person who has had a biopsy and also has hemophilia.
this is a severe blood clotting disease and can be fatal for some surgeries.
I need to know your experience and what medications you took before
the biopsy. To date I have not found a urologist who has ever done a
biopsy on a person with this problem.
On another topic, I am 85 yrs old but in pretty good health. Is a biopsy
worth doing at my age....?

[ohno]

I remember my dad telling me that no one wants to be 86 except the guy who is 85....(:

I wonder what your PSA is?

Nice that prostate cancer is most usually slow growing.

There was a med technician here who wrote about how a biopsy isn't needed anymore, as they can do a MRI-S instead, which is non invasive, a doctor Wheeler does them in Florida I know, and they do them in the UK to look for prostate cancer.

Here is a copy of a post he wrote: "There is an alternative to having a biopsy, it's called an MRI-S of the Prostate. Keep in mind that a biopsy will only find Cancer 20-30% of the time, where an MRI-S is about 90% accurate in finding Prostate Cancer with ZERO chance of spreading Cancer. So my friend, PLEASE don't let any more Doctors stick any more needles in you...Craig" he uses the handle "mris-guru"

good luck!

[Froger]

[quote="ohno"]I remember my dad telling me that no one wants to be 86 except the guy who is 85....(:

I wonder what your PSA is?

Nice that prostate cancer is most usually slow growing.

There was a med technician here who wrote about how a biopsy isn't needed anymore, as they can do a MRI-S instead, which is non invasive, a doctor Wheeler does them in Florida I know, and they do them in the UK to look for prostate cancer.

Here is a copy of a post he wrote: "There is an alternative to having a biopsy, it's called an MRI-S of the Prostate. Keep in mind that a biopsy will only find Cancer 20-30% of the time, where an MRI-S is about 90% accurate in finding Prostate Cancer with ZERO chance of spreading Cancer. So my friend, PLEASE don't let any more Doctors stick any more needles in you...Craig" he uses the handle "mris-guru"

good luck![/quote]

I can agree, Biopsy is not a good way to go. I had one, then had a Prostatectomy, it is now 8 months later and my PSA levels are rising. Though it may never be determined 100%, I feel it was spread by the Biopsy. The post-op pathology report indicated all margins were clear, and the tumer was contained within the prostate. It was a pT2c tumor, and I was told I was cured in March 2009, now in November I am looking at treatments I never thought I would have to. I was not smart enough to ask the right questions, and did not get a second opinion. If there is one piece of advice I can give you, it is to do alot of research on your own. Your doctor will only do what is in his or her best interest, and go home not worring about you every day. No one is going to be more concered about you than you! My doctor is a very nice man and I get along great with him. But he does not have Prostate Cancer, I do. He will answer all my questions when I ask them. The problem is he does not give me all the options he should, case in point MRI-S.... I had a 12 core needle Biopsy, 4 of which were a Gleason score of 7. That is 12 times that the needle could of (And probably did) spread the cancer outside of the Prostate. Once it gets out there is no cure, only treatments. I am 51 and only begining my journey down the treatment road, but I feel it was not necessary to have to go this route. I may be wrong, but my gut feeling is I am right. With alot of luck I will live to be you age, though it is very unlikely unless a cure is found within the next few years, I will be part of the statistics. The numbers are staggering and do not lend alot of hope, and it is a terrible way to go. But hey, it is what it is, and we got to go someday. Research, Research, Research, Good Luck!

[ohno]

what a drag, to say the least. yes, they cannot determine if it was the biopsy that spread the cancer, that may be why they love the biopsy! (other than the money) It could also be the surgery that spread the cancer. cutting spreads cancer unless they get every bit. If the cancer isn't in the bones yet I just wonder if HIFU could kill it, as they actually can see the cancer outside and inside the gland with the ultrasound. After my treatment the doctor told me that he couldn't see any outside the gland. but I don't know if this would work, of course, but I would phone Dr. Scionti and ask him for his advice, his nurses are very well trained and you can reach them at 888-874-4384. It's worth a try. He really does care, his research is number one to him, all his data will determine if HIFU gets approved, so he will only accept you if he feels he can be successful, he's the best doctor I've ever met, I really wish you well, 51 years old, this needs to be cured.!

Best of luck

[Froger]

Thanks for the reply and Info. I go in to see my doctor in the AM to go over the latest rising PSA test, schedule the CT, MRI, PET, etc. scans and get the Oncology referal going. I will be looking at all my options closer now. Clinical trials are not rulled out. I will call the Dr. you mentioned and see if it is feasable for me to see him? I live in the Panahandle of Florida so most anywhere is a long way from here. But if I need to travel, I will, at least as long as I can. Treatment is going to be a large part of my life from now on. I am thinking of creating a "Bucket List" to work on, maybe between treatments. Sounds like a good idea! Take Care!!!

[ohno]

Froger,
You live in the panhandle of Florida? Dr. Scionti lives in Hilton Head S.C., that's real close by!

I was thinking of the hypothesis that a biopsy spreads cancer last night, and I realized that I've been in touch with more than 50 who have been treated with HIFU and no one knows of anyone whose cancer has spread after HIFU. We know of two who later found more cancer still in the gland, but none outside the gland. We all had a biopsy prior to HIFU treatment. I've read many many stories of the cancer spreading after surgery, and so my feeble deduction is that it's the surgery that spreads it. A nurse told me that I'd be in shock to see the surgery, it's so messy, nerves and parts all tightly wound up, cutting in there is a gamble.

Don't waste your time on a bucket list! (:

[Froger]

Ohno,

Thanks! Hilton Head is not really that far, and I have some family up in Moyock NC, though I may not need to travel for a while. It seems my prayers and the prayers of many others are being listened to. My PSA levels have been rising since May, and today I got the November reading, it went down! In fact it went back to the July levels!!! My doctor is thinking we should retest in February now, and enjoy the Christmas Season. I am both shocked and very happy with the test results. Untill the readings are consistantly in the .0X level as they should be without a Prostate, I will be wary. But for now I am going to enjoy the season with my family and put my concerns about this on the back burner. Life is way to short to do otherwise. Come February I will look at the levels then, and Lord willing they will be at or about .03 or lower. The text book level of concern is .2, but if one waits untill then to take action, it will be a much more involved process to go through. I plan on being very pro active in trying prevention first, if at all possible.
Take care!

[ohno]

Great news froger!
I've heard of a high reading after surgery, it's called fantom PSA (I think), it's just still in your blood stream, but means nothing.

Please do let us know what happens in Feb., but it looks good! It can't go down for no reason!

BEST of LUCK!!! and happy holidays!!