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Living With SPina Bifida

Post a new topicby livingwith on Mon Mar 09, 2009 4:23 pm

Hi,
My name is Mary. I’m 45 years old, and was born with Spina Bifida. I’ve had incontinence issues my entire life, caused by the spina bifida. I had my right kidney removed when I was 9 years old, started intermittent catherization shortly afterward, and had an artificial sphincter implanted when I was 19. I’ve had the sphincter repaired twice, because of tears in the cuff, with the most recent one being a year ago next month. I just recently found out that I may now have a s...Read the full article
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Re: Living With SPina Bifida

Post a new topicby brybry on Tue Apr 07, 2009 6:43 am

I am a 40yrs old male and have Spina Bifida nad also have had a Sphincter implanted when I was 22yrs old but had to have it removed as the pump failed after 7yrs and now have to intermittant self cath due to bladder neck being closed with necrotised tissue, but I under stand the frustration in having the hernia.has it been due to the repeated repairs??
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