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Possible Pufundel Nerve Damage/ 3yrs chronic pain

Post a new topicby Seth0666 on Sun Jan 04, 2009 7:20 am

Hi to anyone that will read this and a future thank you to anyone who will help me! Spring semester '06 I injured myself by leg pressing 800lb, I have been in pain since. I've seen many doctors and they keep on ordering the same tests(all which come back negative, except the ultrasound) or saying similar diagnoses, frankly, I'm in the tunnel and there is no light. I've been trying faithfully to find a doctor that will look at me with sincerity, listen to me, palpate where I ask and fully consider my opinon since college graduation in may '07. Now for facts, symptoms and their severity in chronological order. I hope this helps but I have had so much in my head for so long its hard to condense it all. I am a 24 white male, ~150lbs, 5'10. mechanism of injury was not the leg pressing itself but rather precipitated by that action. after i got the 800lbs 4 or 5 times it was hard to walk, but later that evening at my place I went to sit on a chair, leaning my head forward and bringing the chair behind me, I felt my scrotum pop or tear, just at the start of the scrotum on the right side about an inch or two down. The way I think of it is a circle, with my point of injury at the right side of a horizontal line cutting it in half. If you poke at the point of injury your finger would go through the point where the scrotum begins, go behind the spermatocord or whatever and then into some kind of tissue that gives me radiated pain into my rectum when i hit it. This pain was instantaneously excrutiating, it knocked me to the ground holding my genitals with both hands for about 2 hours until a friend drove me to the ER, where they looked me crying like a baby gave me a shot that made me feel drunk and witless, did a ultrasound of my scrotum to rule out testicular torsion and sent me home, STILL in pain. I would remain to have this pain, not like the first sensation (10) but not much behind (8), and maybe after about 3 years of pain it might be a 7. One of the biggest troubles interfering with my attempt to describe this pain was how much the pain radiation confused my judgement on the origin, the exact point where I injured myself. It was only recently in past month or two I started to be able to feel where most of the pain was coming from, I became very good feeling the first sensation after staying still for hours, due to the pain and depression I know for certain I felt a ridge or a line of scar tissue or a nerve that was extremely painful upon touching, located near the point of injury going from slightly outside the scrotum on the right moving into the scrotum behind the spermatocord and up along the base of the penis, close to the vein that keeps growing. Immediately after I injured myself, my urethra and anus would hurt tremendously after going the bathroom. The first bowel movement I had after my injury I was in so much pain my vision blackened and I passed out. It felt like my butt was on fire,burnt and I could feel my stool coming out scraping my burning insides. Pushing the stool out wasn't even the bad part though, it was after that when my rectum or colon would "bounce" back, I got the tremendous pass out type of pain. It felt like my insides were recoiling back up, like something was squeezing my insides with a ton of pressure, and the more the pressure the more the pain. My scrotum was the first thing to feel like it was on fire, burning and raw and sore, then followed by my penis. I would continue to have these pains for months after the injury. Another sensation I felt the very next day after injury was the pinching of my vas deferens, spermatocord, or epididimytis on the backside and slightly right of my scrotum, very close to the original point of injury. It was also immediately evident that I was going to have trouble walking, because every time my right inner thigh would rub against my scrotum I would be in pinching pain. This would require me to kick my right leg outward in attempt to relieve the pinch. Over the next couple months my pelvis became more sore, raw, burning, but it had not yet reached my rectum, only a little farther than the scrotum all around and into the right leg. I also began to feel a vein or scar tissue emerging right at the base of my penis on the right just before it goes into my body. So I came to have kinds of pain, the baseline pinching sore radiating feeling, and the occasional jolt pinch that was more intense. To give perspective I'll try to make a pain continuum with my symptoms, with 10 being worst. 10:injury, 9:recoiling pain from b.m. 8:pinching jolts starting at origin and radiating into testicles (right more than left), scrotum (right more than left part), up along spermatocord into abdomen (that really hurts) and into my right leg.5-4: burning sore feeling from my genitals across my perineum to my anus. What alleviated my pain:burning showers, hot packs to genitals and ice packs to my anus (stopped the ice after a month due to senstivity) caffeine*, laying on left side with right leg slightly out front and elevated during very very long attempts of getting rest; and what makes it feel worse:excessive walking, rubbing back and forth of inner thigh with my scrotum, sitting, urinating,defecating, being bloated, laying on my right side, laying on my right side with my left leg up, drinking alcohol*. I starred drinking caffeine and alcohol because these make me wonder what vasodilation and vasoconstriction have to do with my pain and how quickly i can notice my pain increase when drinking alcohol. My normal leg kicking to relieve the pinching stride is debilitated to me dragging my right leg and foot so bad because I am avoiding movement due to the increased soreness, burning and general pain of my genitals, perineum and rectum. Urinating after drinking alcohol is ecspecially painful as well. Its as if the pain follows the tissues around urine, i feel pain at the origin and in the back of my scrotum usually, and occasionally into my rectum. To date, all the tests I've had done, cystoscopy, colonoscopy, MRI's, CT scans, glucose injections to ligaments above my scrotum and ultrasounds, all of them save the last two came back negative. Their was a poor image of a portion of the vein or scar tissue from the ultrasound and the lidocaine injection with the glucose let me be painfree for about 2 hours. After reading the description of pudundel nerve damage and what it feels like, this sounds exactly like what I have. I pray that someone finds this post and can help me out, I fear that I will not be able to perform my job to the best of my abilities not to mention the poor health from not being as mobile. Any advice on where to go, who to seek and what treatment would be the best would be greatly appreciated. God bless.
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Seth0666
 
Posts: 1 | Joined: Sun Jan 04, 2009 3:51 am

Re: Possible Pufundel Nerve Damage/ 3yrs chronic pain

Post a new topicby rfollen on Thu Apr 09, 2009 3:50 pm

Hello,
My heart goes out to you. There are many of us out here with the same symptoms. You are not alone.

I found a great forum where your (our) problem is discussed. Check it out. It's helped me.

http://www.topix.com/forum/med/urology/TB3V8ES9L7UD40642

Start at the beginning and read through all the posts.

Good luck and God bless.

Rob F
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rfollen
 
Posts: 1 | Joined: Thu Apr 09, 2009 3:42 pm